Disability advisory group New Zealand owner

Disability Advisory Group New Zealand

Disability Advisory Group NZ

Are you affected by some type of disability, do you feel that your Government and councils do not listen to your concerns.

What about parking do you avoid busy places because you can not get a car park? Should the disabled be forced to use parking ticket machines that are not accessible?

Do uneven surfaces and broken footpaths make moving about difficult.

We want our Government and councils to listen. This website has links to contact your council DAG or use our Facebook page to make your concerns public.

Disability Advisory NZ is a more open group than local councils run. Disability Advisory Group NZ on Web and Facebook

ADHD a lived experience

Living with ADHD

It's just not my friends and family that need to be educated it's our community too!

It's always difficult when you are informed of say for example parents teaching kids to be bullies to my son, and on how to handle it. So before i knock on your door and give you a few home truths and to worry about your own back yard and stay the out of mine, i want you to read below... here’s what I’d like them to understand about me, my son and ADHD:

It’s not his fault he behaves this way.

My son’s brain works differently than other kids—it’s a NEUROLOGICAL issue. He’s not doing these things on purpose. Believe me, if he could better control his impulsivity, hyperactivity, lack of focus and overblown emotions, he would. It’s no fun to struggle with these things.

It’s not my fault he behaves this way.

I may not always do the right thing as a parent, but my parenting isn’t the cause of his challenges. Yes, I discipline him. And when he acts out, I give him consequences. But what works with other kids often doesn’t work with him. Or it doesn’t work every time. Sometimes I blame myself, even though I’m not sure what I’m blaming myself for. Every day i carry his burdens on my shoulders and at times this can get the better of you.

ADHD is complicated.

It’s not just about being “hyper” or not listening. What you see isn’t even half of it. He struggles in all sorts of ways you may not even notice—with things you may take for granted in your own kids. Turning in homework. Keeping track of time. Organizing his things and his thoughts. Applying what he knows one day to what he needs to do the next.

He’s not being rude or defiant.

Well, he can be from time to time, just like any kid. But the behavior you may see as disrespectful (to me, or to other people) isn’t really that. Once my son realizes he’s been hurtful or made others unhappy, he feels terrible. He doesn’t mean it.

We’re both trying as hard as we can.

We try schedules and checklists to try and keep things on track. We role-play ways he could have handled things differently. He works hard every day to keep it together at school, even if it means losing it when he comes home. I work hard to not lose it when he does. It’s exhausting.

Putting my young child on ADHD medication wasn’t easy.

He gagged the first time he tried to swallow a pill. He cried the first time he couldn’t finish his milo smoothie because he had less of an appetite in the morning. I wanted to cry, too. But the medication truly changed his life. It’s not everyone’s choice, but it was our family’s choice. I just don’t want people to think I did it lightly. When they wear off he is hungry and eats like a horse and can become challenging if he is provoked, teased or disturb his concentration, something his little sisters do often.

Feeling judged makes everything worse. It isolates us, when what we need most is support.

He’s so much more than his ADHD.

If people could look beyond the challenges, they’d see the person I see. He’s funny and smart. He’s loyal, almost to a fault. He picks himself up when he falls, and tries again. Most important, he has tremendous empathy. And unlike many people, he shows it all the time.

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